Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Along with the wonderful goodies, my sister came with, her daughter Laurie sent up some clay ornaments. They are just so cute, I love the faces. I love the "Marshmallow Family" and the "No Fly Zone" frog. Thanks a bunch Laurie.
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