Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease. I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Monday, December 10, 2012
Good news from Manon
Hello tis me again, I have to apologize to Manon, my former colleague from work. She and Chantal organized the table at the craft fair and kindly invited me to participate with all the funds going to the FOP. They are fantastic ladies!! I kept forgetting to tell you that Manon sold another $70 of goodies after the craft fair and she will be donating that money as well to the FOP! Many, many thanks!! Luv ya dearly!!
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