Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Louise - Ottawa, Ontario Canada
Barb - Ottawa, Ontario Canada
Carole - Ottawa, Ontario Canada
Gwen - USA
Di - Arkansas, USA
Sandy - USA
Janice - Ottawa, Ontario Canada
Claire - Ohio, USA
Tina - Ohio, USA