Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Hello everyone, I apologize for not posting in a while but I was off visiting 2 wonderful ladies in Massachusetts. I first met Roberta and Peggy at a retreat in February and they invited me down for the garage sale at Sudberry House. They have a sale the first 3 Saturdays in August, so of course I just had to go down and visit and shop!! I stayed with Roberta and her husband and their 3 cats and Peggy was there as well. We had a wonderful time, they took me to 3 different cross stitch stores (one that was 2 hours away!!) and 3 or was it 4 different quilt stores. Oh dear me, that was dangerous and they really had to twist my arm to go shopping at these stores!! Let me just say that I spent a few pennies and thoroughly enjoyed myself. I used to sew quite a lot years ago and I even did a bit of quilting but nothing like Roberta, she has gorgeous quilts and quilted pieces everywhere in her home - simply stunning. So of course, all these goodies brought back the itch to sew! I bought some lovely fabrics and a few kits to get me started. Don't worry, I will take pictures of the finished goodies.
I hitched a ride with Janice and Dave and since I wasn't driving I was able to do some stitching. I started the little red piece and did the middle of the design and then added a few fans at the edges and turned it into a humbug. It is really cute.
And of course I talked about Jaxon and FOP and Roberta was very generous and opened up her Christmas ornaments box and donated quite a few. Check them out, these ladies are finishers extraordinaire!