Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease. I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Tuesday, July 29, 2014
A wonderful surprise
Hi there, I know, I know, it's been a long time between posts.... I must apologize again but there really has not been a lot to write about. My brother Robert and his girlfriend came down on Sunday for brunch and of course most important to visit my Dad. Had a lovely brunch at a local restaurant as we do every Sunday. So what surprise did I get - to be very honest, I am blown away by this persons generosity!! My friend Aury (designer AuryTM) had moved to Texas last year and she had joined a local stitching group. She was telling these ladies about me and my Stitching for Jaxon project and one lovely lady Barbara said she had a FEW things she could donate to the cause. Well, I don't know about you but to me a few means one or two, okay maybe 10 (if we were talking about buttons and small things like that) but holy cow, I sure as heck wouldn't think it meant over 40! When I was in Nashua, Aury sent me a picture of what was going to be in the box when she mailed it and there was 48 stitched pieces. Well, that was in May, I received this box last Wednesday, and it was STUFFED and I do mean stuffed! There has to be close to 100 pieces, some are small (bookmark size) and some are large as is 18x20...and yes, I will be posting some pictures soon. A huge, huge, huge, gigantic hug goes to Barbara. Words cannot express my thanks. Louise
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