Rare Disease Day - February 28, 2015

Did you know that February 28 was rare disease day?  Well don't worry a lot of us didn't know either, in other words you weren't alone. Unfortunately there are a lot of rare diseases in this world.  My niece was interviewed by 2 local TV stations here in Ottawa to discuss the problems that she and Jaxon face every day.  I found out through these interviews that not only does Jaxon have a rare disease but his disease is considered ultra rare!  I will try to put a link to these 2 interviews on the side bar as well as here
http://ottawa.ctvnews.ca/video?playlistId=1.2253630 and https://www.facebook.com/video.php?v=284945878295767&pnref=story  hopefully if you click on them you will be able to see the videos.
Hugs to all. Louise

I'm Back!!

Hi there, I bet you thought I was gone for ever....well, I have been busy taking care of my Dad.  He was hospitalized for a month (the majority of January) and once he was back home, my siblings and I made sure that someone was there for him 24/7 for the first 2 weeks.  Then my siblings left and it's now back to just me.  As a result of the problems that occurred for Dad to be hospitalized, he has now lost his drivers license so guess who gets to drive him to all his appointments.  And there were a lot of follow ups with all the specialists as well as his regular doctor and dentist and hearing aid specialist.  So please excuse me for not posting but I have been busy, honest I have.  As for stitching, I haven't been doing a lot of that lately, did a bit in the hospital while Dad was sleeping and a bit while he was at the dentist.  So I will be able to finish that one and have a picture to show you.  And today I started the Tribal Teapot, something totally new and its going to be just for me!!  I think I have maybe 50 stitches in it, so you will have to wait for the pictures.  lol.  Next week, I am off to Branson, Missouri to attend a stitching retreat organized by Cecilia's Samplers.  My brother and his wife are coming to Dad-sit while I am gone.  I can't wait...  So until the next time, thank you for your patience with me and for reading my blog, remember that you are loved.  Louise