Did you know that February 28 was rare disease day? Well don't worry a lot of us didn't know either, in other words you weren't alone. Unfortunately there are a lot of rare diseases in this world. My niece was interviewed by 2 local TV stations here in Ottawa to discuss the problems that she and Jaxon face every day. I found out through these interviews that not only does Jaxon have a rare disease but his disease is considered ultra rare! I will try to put a link to these 2 interviews on the side bar as well as here
http://ottawa.ctvnews.ca/video?playlistId=1.2253630 and https://www.facebook.com/video.php?v=284945878295767&pnref=story hopefully if you click on them you will be able to see the videos.
Hugs to all. Louise
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