Monday, April 6, 2015

Rare Disease Day - February 28, 2015

Did you know that February 28 was rare disease day?  Well don't worry a lot of us didn't know either, in other words you weren't alone. Unfortunately there are a lot of rare diseases in this world.  My niece was interviewed by 2 local TV stations here in Ottawa to discuss the problems that she and Jaxon face every day.  I found out through these interviews that not only does Jaxon have a rare disease but his disease is considered ultra rare!  I will try to put a link to these 2 interviews on the side bar as well as here and  hopefully if you click on them you will be able to see the videos.
Hugs to all. Louise

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