Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease. I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Thursday, August 20, 2015
August 2015
I had promised to write more and keep everyone up to date. Well, I obviously didn't manage that and I do apologize. Since my last posting, I did manage to get to Branson, Missouri for another wonderful retreat organized by Cecilia's Samplers. My brother and his wife came down to Dad-sit while I was away. Dad is doing remarkably well considering everything he went through in January. As for myself, well..... I strained my right rotator cuff 3 months ago. Since then I've been going for physiotherapy 3 times a week and are you ready for this I wasn't allowed to cross stitch! Trust me, I really haven't been in shape to do any stitching, I have been on anti-inflammatory medication as well as pain killers. To give you an example, I sneezed the other night...not a quiet little sneeze but a big full body sneeze, the type of sneeze where every single muscle in your body clenches before releasing! I was in so much pain that an hour later I had to take something for the pain. So in a nutshell between all the running around I do for Dad and this shoulder problem, I really haven't done anything. So until the next time, I thank you for allowing me to be a part of your day. Hugs, Louise
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