Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease. I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Thursday, June 26, 2014
Definitely overdue to post
Hello dear friends, I am definitely overdue in posting!! I really do apologize but there hasn't been a lot going on that was worth writing about. Some days, I am very boring... honestly, some days I don't do a lot. But I have been doing a lot of reading and thinking. We recently had Fathers day here in Canada (not sure when everyone else celebrates it), Dad and I and our friend Angele went out for brunch like we normally do and then last Sunday, my brother Robert and his son, Patrick came down to join us for brunch. Patrick is a full head taller than me, he has to bend down to give me a hug... now before you start thinking that I am vertically challenged (short) I am 5 feet 7 inches tall (honestly) so now you have an idea how tall Patrick is!! It was great to see them again, I am very fortunate that they come down often to see Dad. I know that he appreciates it. I love catching up with all the good gossip that I hear from them. Recently my cousins Dad passed away, I don't really remember much about him except his smile and his laughter and to be honest what a lovely memory to have of someone. Well, I am off to make myself a cup of tea and to pick up some stitching so that I have something to show you. Until the next time, remember that you are loved. Big hugs, Louise
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