Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Hi everyone, thank you so much for reading this blog, I hope you find it interesting. Well, as the title states, I am just back from Branson, Missouri. My friend Janice and I went there for another stitching retreat - this time it was organized by Cecilia's Samplers. We had a great time, met a lot of wonderful people and some of them were even stitchers (imagine that). I have so much to tell you about the trip that I really don't know where to start. So I will give you an update on my Wizard - I was hoping to finish him during the trip but I think I talked too much (for those you don't know me - yes, I can tend to talk a lot especially when I am passionate about something). As you can see, I am not quite finished him, I still have the left side to finish, some more beads to add and then some backstitching. I can't wait to see him finished, he has been a lot of work but I think he will be worth it. Someone asked if this was for me, I replied, if someone wanted to buy it then the money would be donated to the charity. I will have to try and take this at a bit of an angle when it is finished so that you can see all the beading, there are gold beads, purple beads, little white beads, ice beads, blue beads, red beads, periwinkle beads and dark blue beads - can you see them all? have fun looking. lol
I talked a lot about this blog and about FOP and these ladies were very supportive. I had brought down a couple of things to show some people - like Laurie's ornaments and some needle minders that I had made - well, they went like hotcakes. These ladies were very generous and in total I received $139 for this cause. Thank you so much, your interest and generosity is very much appreciated. I will have to ask my niece Laurie to make some more frogs because when I told a few ladies about it, they wanted some. I will ask her to change her sign from a "no fly zone" to "rip-it, rip-it". I think it will be cute.
Well ladies and gents, I think it is time for this wanderer to hit the hay. I will post more tomorrow about the trip.