Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Sorry folks, I have been having problems logging into blogger, don't know why, will have to check into it some more. (big sigh). I know that I owe you some photos of last years completes so here are a couple of them. This is the Santa biscournu that I did for my friend Janice, it was one of her Christmas presents. On the bottom side I attached some buttons - Christmas tree, snowman, poinsettia and of course a Canadian flag - yes, I am showing off my pride in my country. Hmmm, now I have to find the other photos, I really hate it when I can't find something on the system. Am I the only one like this? Found the one that I wanted, it is a picture of the biscournu before I stitched it together. As you can see, Janice has already put it to good use, see the needle sticking out - she was absolutely thrilled to receive this. Well folks, time to find the other pictures and maybe do some more stitching this afternoon. Take care, love ya, big hugs. Louise