Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Hi there, well its Sunday night and another weekend is almost over. I did promise you some stats about the month of January and I also have a few pics to share with you. I had over 900 visits during the month; half of them from my fellow Canadians and about a quarter of them from my friends in the States. Other countries included Australia, France, Germany, Hungary, Israel, Mexico, Netherlands, New Zealand, Portugal, Romania, Russia, South Korea, Spain and the United Kingdom.
In case you are wondering what on earth am I showing you with the pile of thread.... it is all my orts from the month of January. Orts are the bits that are left when you snip the thread and the pretty little jar was made for me by my friend Kathy and she calls it a snippet jar. So there you are. When I have finished them into ornaments, I will give you the information on the threads and the designers. Take care. Louise