Friday, November 8, 2013

Craft fair is over

Hi everyone, well the craft fair is over for another year. We did pretty good, we had sales of $350. We also sold a couple of things ahead of time bringing the grand total to $500 for the day!! But more important, I spoke to a lot of people about this rare disease. They had a lot of good questions - almost always they asked if surgery was a possibility. Unfortunately it is not, the healing process from the surgery would cause more bone growth. People were appalled and saddened that there was such a horrible disease out there. But like everything else, unless we have family or friends with rare diseases, we don't hear about it. Thank you all for your support, love Louise


  1. Wow! The craft fair was a real success!!! Congratulations :)

  2. You have done a great job of raising awareness of this genetic wish would be that no child would suffer illness. You are a true inspiration to your stitching sisters. It was a pleasure indeed, to have spent the last year watching you stitch your beautiful creations on young Jaxons behalf.