Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Hi there, yes we made it home from Branson, had a great trip and really enjoyed ourselves. The trip to Branson was in the beautiful sunshine but coming home was a different story. We left on the Wednesday and headed to Carthage, Missouri to see the Precious Moments Chapel. Thank you to my dear friend Kathy for recommending that we go there. It is awe inspiring and I have so many pictures that it deserves its own posting. The weather co-operated for us to view the Chapel and the rest of the day was sunny. However on Thursday and Friday - it poured rain and it rained and rained and rained.... get the idea.
Church in St. Louis near the Arch
On our tip, I did manage to get a few pics of the scenery, local fauna and some wildlife (okay ... birds). We had to stop in St. Louis to see the famous arch. It is immense. Enjoy the pics. And thank you for taking the time to read my blog. Louise