Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
I just had to share this with you. My friend Cindy sent me some really cute things that she made especially for me (doesn't that make me sound special). I love the Mug Rug, what a nifty idea and when I have my craft room all set up, that will be on the table right next to my chair to hold my cup of tea for me. But I have to admit - I was wondering what the heck the Grin'n It was?!? I felt like one of the cartoon characters that have the little cloud over their head with a whole bunch of question marks in it. Well yesterday I was exhausted and it wasn't until this morning when I looked at it again that it dawned on me. duh.... what a dumb bunny - of course it says "Grin and Bear It". The two little teddy bears made it all the way from Colorado to Ottawa without a mishap.
So folks, until the next time, have a great day and remember that you are loved. Louise