Jaxon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) 5 days after his second birthday (Feb 2011). His mother told me that Jaxon is the seventh (7th) child in Canada to be diagnosed with this rare disease.
I am his great-aunt Louise and I come up with the idea of this blog to keep people informed, and to use my passion for stitching to raise money for the FOP organizations.
Oh my goodness, two posts in one day.... well, I just had to share the news with you - I deposited another cheque into the CFOPN account - value... drum roll please....... $300!! Thank you to all my friends who have bought some goodies from me.